The Way Things Are Supposed to Be

As I’ve mentioned on this blog before, my older son Bowie has Sensory Processing Disorder (SPD). He’s also emotionally volatile and fragile, likely as a result of his condition being misunderstood for so long, but he’s also just a sensitive guy.

My husband, my younger son and I spend a good deal of time just negotiating life with Bowie. Handling outbursts. Avoiding outbursts. Trying to give him everything he needs and deserves to be happy, healthy and successful.

I think, for the most part, we’ve grown accustomed to it. Often people passing us on the street mid-breakdown are astonished at his behavior, and that we appear to be so nonplussed by it. But there are those days when he has one too many breakdowns, and our nervous systems just can’t handle any more. Or, we get a lecture from a stranger about what a shit job we’re doing raising our shit kid. And then I just lose it. My husband appears to hold up okay, but I bet he’s losing it too.

Our younger son Ferris is around the age now that Bowie was when we first started to suspect there might be a problem. And so far, Ferris doesn’t seem to exhibit and of those troublesome traits (knock on wood). He’s a much calmer, more agreeable child. Of course he throws fits, he is just three after all, but it’s nowhere near the level we were dealing with for Bowie.

I find myself sometimes alone with Ferris and thinking, this is how it is supposed to be. This is how it was always supposed to be.

I don’t have to worry about Ferris randomly punching another child. I don’t have to worry about him yelling, “Fuck you!” at another child, or at me. I don’t have to worry that he’ll bite another child, or another parent. I don’t have to drag him kicking and screaming from a crowded public place because he’s completely overwhelmed. I don’t have to worry that he will head butt my face, sock me in the eye or kick me in the teeth.

Yes, Bowie actually did all of these things.

It’s the trouble with having your first child be a child with special needs. If you have another child, you get a glimpse into what a “normal” kid is like, and the whole special needs situation that you thought you had the hang of suddenly seems so very abnormal. 

It’s not that I wish to change Bowie in any way. He is my son and I love him 100%, difficulties and all. I never let my brain get to that place where I start to wish he were different. I stop those thoughts dead in their tracks. Because that’s not how I feel.

Sometimes I just wonder what life would have been like for us, what life could have been like for Bowie, if we weren’t dealing with SPD. It would have shaped our family so differently. But would that have been a good thing or a bad thing?

And how do people cope with larger issues? Bowie’s SPD is no walk in the park, but it’s pretty low on the scale of special needs in kids. What is it like for people who have it a little harder than us? I feel like I should just be grateful that Bowie is difficult, yes, but manageable.

I’d love to hear from other parents of kids with special needs. Or people who are friends with them. Do they ever get caught up in this “what if?” thinking? And do they feel mass amounts of parental guilt because of it? Is it taboo to talk about your other child(ren) as “easier?”

Just some stuff I’ve been musing on lately.

boys

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Making Your Own Bread and Other DIY Adventures

I’ve been on this major domestic kick lately, and have been trying to find ways to make certain food items at home to save money. Tops on my list included bread, jelly, yogurt, dried herbs, snack crackers, fruit snacks and cheese (specifically ricotta).

I’ve been hard at work at the bread thing. I was browsing Pinterest and stumbled on a recipe for “no knead dutch oven bread.” I made it and it turned out ok, and then I wanted to try to make it again, but obviously I didn’t “pin” it and promptly lost said recipe.

So, I did a web search and it turns out there’s a lot of different versions of this recipe. I’ve tried a WHOLE BUNCH of them, so you didn’t have to, and I’m here to tell you that this is the one. This. Is. The. One. Instructions so easy to follow that even me, a total baking incompetent, could follow them. Four measly ingredients that you always have lying around anyway.

It’s slightly time consuming, you have to remember in the morning that hey, I wanted to make bread for dinner tonight. But other than that, piece of cake. Er, bread. Whatever.

I found this recipe on a site called Girl Versus Dough. Click on the link, and make your life a whole lot more interesting.

Next, I’m going to try to perfect sandwich bread. I think it can be done. Anyone ever had luck with this? Without a bread machine, I mean. We got a bread machine as a wedding present and used it a lot those first few years, but then it sat in the cupboard and we decided to give it away at some point. I’m missing that thing all of a sudden…

What sorts of items do you make at home rather than buy pre-made? What are your biggest successes/failures?

my bread

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The Holidays, Anxiety, and Me

This time of year makes me crazy. No, scratch that, I’m pretty crazy all the time. But, this time of year really brings it out in me.

All the lights and trees and adorable snowmen make me happy. I like Christmas, I like the winter season and everything it brings. I like celebrating with family and friends. I like getting gifts, and even more, I like giving them.

But, there’s something about a year drawing to a close that gets me down. There’s a lot of pressure to make the next year better. To become a better version of yourself. And, I like to think every year will be a better year. Except…what’s coming my way? Will it be good or bad? Will it be scary? Will I be able to handle it?

Having recently been diagnosed with Generalized Anxiety Disorder (GAD), it all makes complete sense to me now. All those unexplained Christmas crying spells when I was a kid, sitting alone in the living room with only the Christmas tree lighting the room. All that holing myself up in my room all winter as a teen, instead of being with friends. All that relief I felt when school would start again in January, and I had less time on my hands to think. I get myself in trouble when I think.

As a part of my GAD, I also have Seasonal Affective Disorder (SAD). A disorder that affects people specifically during this time of year. It is attributed to the lack of sunlight and shorter, darker days. So, it’s like adding fuel to already very raging fire. I’ve been told that “SAD is a bunch of crap.” I say, tell that to someone who suffers from it.

It helps to have kids. There’s nothing more magical than a kid at Christmastime. The wonder and excitement in their eyes as they dream about what Santa will bring. My kids don’t know the beauty of snow, and truthfully I never really liked the stuff. But, every year when the first flakes fly, it’s very magical and exciting. And the pure, unfettered happiness when they see a house all decorated with lights and wreaths and a big, shiny tree. With their help, I can see beauty in this time of year.

This year, armed with the knowledge that all my sadness and anxiety are due to chemical imbalances in my brain, I can relax and enjoy life a little more. When I start getting sad or panicky, I can recognize it for what it is and calm down. I have found ways to make life easier on myself–minimizing Christmas shopping, keeping the decorations at a minimum, keeping the gifts simple and heartfelt, keeping get-togethers small.

There’s also the fact that 2015 was about as low of a year as one can have for me. While my anxiety still has me on edge about what 2016 has in store for me, I’m also very happy to welcome it with open arms. A whole new year, a whole new, blank slate for me to fill with happy things, new challenges, new adventures. 2015 is in the past, and that feels good.

I feel like holding hands with all of you, in one giant circle, and stepping into 2016 together. We can do this together. It feels less scary when I allow other people in, and work together to make things happen.

So, have a wonderful holiday season, and come with me to 2016. May it be the best year any of us have seen yet. No pressure though.

xmascard

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It’s the Most Modest Time of the Year

When I was a kid, we didn’t have a lot of money. The holidays were simple. Great! But, simple. My mom and dad always did their best, and we always had good gifts.

It wasn’t just Christmastime that it was like that. We ate simply, and I argued with my mom every single year when it was time to get back-to-school clothes. But, the hot pink dress flats! All the girls in my class will have them!

We have a lot more money than my parents did. But, I want to raise my sons to know there’s more to life than possessions. I feel like I grew up with an appreciation for things. With the ability to wait and save up for things I really wanted. How to tell the difference between something I wanted and something I needed. I know the value of a dollar.

In today’s world, this is an all but forgotten concept. Especially in the United States, kids are raised to think they can have anything they want, and be surrounded with stuff. Hardly anyone tries to raise their kids to be happy with what they have, and to be happy with less.

We keep the toy box half empty. They don’t need every single toy they see on TV. And they don’t need 1,000 different things to keep them happy. A set of blocks, a few Matchbox cars, a train set, some art supplies. This fosters creativity, and a true appreciation when we do introduce a new toy. After a while of getting all the toys they want all the time, receiving a gift begins to lose its meaning.

It’s not that I don’t want to shower them with a ton of gifts. I love my children with all my heart, and want them to have more than I did when I was younger. But, that doesn’t mean there can’t be a balance. Good, nice gifts, but not every toy on the shelf. More presents than I got as a kid, but not a gigantic pile under the tree.

What’s your philosophy? Do you get your kids new stuff all the time? If you can’t afford to do that, are you sad that you can’t get more? How do you talk to your kids about money/consumerism?

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Sore But Relieved

post op

Hey! The surgery went off without a hitch. Well except that I have a huge gash and broken bone in my foot. But, whatevs.

Originally the surgeon thought they’d have to break two bones, and have me in a cast and fully off my feet for 6 weeks.

In reality, I have one broken bone, no cast, and I can walk around. They didn’t even give me crutches! And, it’s not my driving foot, so I am not housebound. I feel like a really big weight has been lifted, now that the procedure is over.

If this turns out as well as the surgery on the other foot, Im’ma be one happy mama. I am sore, but not like I thought I’d be. I am groggy, but not like I thought I’d be. And I’m hobbling around but NOT. LIKE. I THOUGHT. I’D. BE.

I’m like, seriously considering telling my mother-in-law she doesn’t have to come down and help on Monday and Tuesday like we had talked about, because I’m going to be fine! I mean, this is a whole different picture than the one I had set myself up for. Score one for Worst Case Scenario Thinking! But, just the one. Because that shiz is not good for you. No.

Funny story, somehow my cell phone fell out of the plastic PATIENT BELONGINGS bag at the surgery center, and when I got it back it had a bunch of pictures of rando nurses. Apparently the one who found it was trying to look at my pictures to figure out who the phone belonged to, but was actually just taking a bunch of pictures. Both adorable and hilarious.

Thanks, Internet, for being there to cheer me up. Here’s to my brand new foot that might be able to fit into those fabulous boots I found at the Salvation Army that I stupidly tried on with my good foot.

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Under the Knife

I am having foot surgery this Friday. I have crazy messed up feet, and both have been operated on once already. The right foot was done in 2009, and has stayed looking and feeling as it should. I call it my pretty foot.

The left one was operated on in 1994, and it did NOT stay how it should, and is getting worse and worse, and it is killing me after a long day on my feet. I call it my ugly foot.

According to my surgeon, the one who did the pretty foot, the doctor who did my left foot didn’t do it properly, and they’re going to have to do some hefty repair work while they are in there. Which means more pain. And more recovery time.

I can’t do my job at the local market for three months. I can’t even walk on the foot for a full 6 weeks, then there’s a “transition period.”

I won’t get the awful type of anesthesia they gave me for my skin excision when I had melanoma, so I won’t feel so sick and dizzy for days after, thank goodness. But, I am still worried about how I’ll do the first few days, pain management and all of that.

Wish me luck. Better yet, wish my husband luck, he’s the one that’s gotta take care of me and all the household duties until I am up to it again. It’s going to be a tough one.

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Vlog 003: Circumcision

This topic is HOT amongst moms of boys. What’s your take?

 

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Halloween 2015

I hope you and yours had a great Halloween. Ours was tons of fun. This was the first year Ferris really understood what was going on, and it was really cute. We bought his costume ages ago because he saw it at Costco and fell in love. He talked for months about being a firefighter for Halloween. While we were trick-or-treating, if he forgot to say “trick or treat” at a house, he’d immediately stop and tell us, “Oops I forgot.” Then he’d yell at the top of his lungs, “TRICK OR TREAT!” back at the house he forgot. It was hilarious.

We also had the Last Minute Costume Change with Bowie, who went to school on Friday as a Creeper from Minecraft, and then Halloween night decided he absolutely had to squeeze into the 4T monster costume he’d worn in Halloween past. It worked, but barely. Sorry kid, no monster costume next year.

I know a mom that either doesn’t take her kids trick-or-treating, or she takes them but they give all the candy away. She asked me, “what do you do with all that candy?!” I had to fight the urge to say, “Eat it when they’re not looking. AMIRITE.”

halloween2015

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Vlog 002: Miscarriage

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Vlog 001

I’m adventuring into the world of vlogging! Please share your thoughts.

 

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